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411 Longbeach Parkway
Bay Village, Ohio 44140 USA
800-815-9211
440-899-8887
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Goals of the Twin to Twin Transfusion Syndrome Foundation

Bullet Point To increase public awareness of twin to twin transfusion syndrome.

Bullet Point To increase interest and support from healthcare professionals and referral organizations.

Bullet Point To teach healthcare professionals to be sensitive to the special needs of families with twin to twin transfusion syndrome from diagnosis through delivery and beyond.

Bullet Point To increase awareness of the latest treatment options to save babies affected by twin to twin transfusion syndrome.

Bullet Point To further develop and expand our international twin to twin transfusion syndrome registry to collect medical data on babies from birth and throughout their lifetime to track their health.

Bullet Point To publish our registry data in medical journals and continue to be the primary resource for twin to twin transfusion syndrome medical information

Bullet Point To seek endorsements from national and international medical associations for our Foundation’s protocol for postpartum placental analysis making it universally accepted.

Bullet Point To seek CPT codes from the AMA and ACOG for the various cutting edge twin to twin transfusion syndrome treatments such as laser therapy.

Bullet Point To organize the first international conference solely devoted to twin to twin transfusion syndrome as a forum for the world’s experienced specialists and researchers.

Bullet Point To pass legislation ensuring that Medicaid will cover laser surgery for pregnant mothers without private insurance.

Bullet Point To pass legislation making the standard of care for pregnancies with monochorionic placentas to include weekly ultrasounds from 16 weeks through delivery.


 
The TTTS Foundation In The News

TTTS Twin Angel Folk Fest- Sept 11


In Southington, CT come meet Dr. Julian De Lia and enjoy an amazing day of talented singers all to raise money to fight TTTS. Please come and get your tickets early!
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Join the Official TTTS Facebook Page


Connect on the Official TTTS Group Page.
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New Interview with Dr. Julian De Lia


New video interview featuring Dr. Julian De Lia, his pioneering of the laser surgery for TTTS, and one of countless families that he has helped, The Stocking Family of Chicago.
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Congratulations Dr. Julian De Lia


New York Hospital Queens Gala Honors Medical Pioneer Dr. Julian De Lia
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Live Interview on ClubDeb Radio Show


To help increase awareness of TTTS, The TTTS Foundation's Founder is interviewed on Internet Radio Show.
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Official TTTS Foundation Events
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411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 | www.tttsfoundation.org