Twin to Twin Transfusion Syndrome Foundation Banner
International Office
411 Longbeach Parkway
Bay Village, Ohio 44140 USA
800-815-9211
440-899-8887
Help During Pregnancy Photo

Creating a Medical Plan of Action The Monochorionic Twin Placenta What Is TTTS? Monochorionic Placental Pictures Sonography and Appointment Questionaire Cervical Assessment, Nutrition and Bedrest Planning for Your Delivery Pregnancy Continues with a Loss Medical Research History of TTTS Placental Protocol International Registry Support From Families

Advice from Parents Who Have Been There


"You feel like you are on an emotional roller coaster. Pray and be as strong as you can be. You need a good support system." Loganville, GA

"Don't be afraid to speak up and ask what your options are, and don't be afraid to fight for them." Hartford, CT

"Get as much information as possible. Go to the best doctors you can. And, make your decision based on your own situation. What worked for someone else may not work for you. Pray and listen to your heart and your babies."

"Be pushy - ask lots of questions. Do not pretend to understand if you don't. Look for information from as many different sources as possible."

"Don't give up hope! Take one day at a time."

"Cry a lot. Get as much collective information as possible. See a specialist. Get a second or third opinion. Seek counseling."

"Get as much information as possible. If you don't like your doctor's answers, ask another."

"I was on Medicaid and I feel that I was mistreated. If TTTS is diagnosed, see specialized doctors as soon as possible."

"Don't dwell on the negative. Get educated, stay positive and believe that your babies will survive and thrive." Wickliffe, OH

"Educated yourself more on prematurity of babies. I was so focused on the TTTS and trying to extend the pregnancy that when we had to deliver at 27 weeks, I was unprepared and had to learn as I went through the NICU experience."

"Look at both medical and support from The TTTS Foundation information. See all options. Definitely speak with The TTTS Foundation for sharings of personal experiences."

"Do whatever you can to help. Don't listen to all the negatives."

"Make sure and get as much information as you possibly can before you decide on any one procedure."

"Take all the help and advise you can get. Remain positive, even at the worst. We found our frame of mind helped us to cope with each bump in the road and kept us from making a stressful situation more so."

The TTTS Foundation In The News

TTTS Twin Angel Folk Fest- Sept 11


In Southington, CT come meet Dr. Julian De Lia and enjoy an amazing day of talented singers all to raise money to fight TTTS. Please come and get your tickets early!
> read more...

Join the Official TTTS Facebook Page


Connect on the Official TTTS Group Page.
> read more...

New Interview with Dr. Julian De Lia


New video interview featuring Dr. Julian De Lia, his pioneering of the laser surgery for TTTS, and one of countless families that he has helped, The Stocking Family of Chicago.
> read more...

Congratulations Dr. Julian De Lia


New York Hospital Queens Gala Honors Medical Pioneer Dr. Julian De Lia
> read more...

Live Interview on ClubDeb Radio Show


To help increase awareness of TTTS, The TTTS Foundation's Founder is interviewed on Internet Radio Show.
> read more...

Official TTTS Foundation Events
Copyright © 1997-2010 The Twin To Twin Transfusion Syndrome Foundation. All Rights Reserved
411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 | www.tttsfoundation.org