
Below is a list of how medical professionals can be of help in the fight against twin to twin transfusion syndrome and the programs of The Twin to Twin Transfusion Syndrome Foundation. If you would like to get more involved, please call and let us know. A list has also been created for parents in their TTTS book and on this site.
Give out
Foundation brochures to patients with a monochorionic placenta,
especially those diagnosed with twin to twin transfusion
syndrome so they have information to go home with and a
number to call.
Fill out a registry during your patient's pregnancy. Have
the parents mail the form back to the Foundation after the
birth of their babies.
Spread the word of the Foundation to your colleages and
help us increase referrals.
Make a commitment to go to Congress with us and change the
standard of care of ultrasounds to weekly from 16 weeks
through delivery of the babies. We also will be fighting
Medicare to pay for laser surgeries out of the patient's
state of residence.
Make a financial gift and encourage your patients to support
the work of the Foundation. It would be extremely meaningful
for a family to their doctor made a donation in their babies'
names. Many employers provide matching funds.
Become
a member of our medical advisory board.
Become a member of our Circle of Care Group and help sponsor
treatments.
Become a member of The Miracle Miles Program of Midwest
Express Airlines. As an organizational nonprofit member,
every donation of 15,000 miles earns us a free airline ticket
to fly a mother for treatment that she otherwise could not
afford.
Arrange a presentation by The Twin to Twin Transfusion Syndrome
Foundation.
Learn more about endowments and planned giving to help sustain
the Foundation.
Have an article printed in your city newspaper and/or national
magazines about your involvement in fighting twin to twin
transfusion syndrome and have a sidebar about The Twin to
Twin Transfusion Syndrome Foundation.
Have the local news do a story about you and babies you
have helped save, and include The Foundation’s information.
Write to authors of pregnancy books and encourage them to
include The Foundation as a resource in the back of their
book, and to also include a chapter on the syndrome. This
can also be done in journal articles or letters to the journal
editors.
Scan the Internet and ask various pregnancy and medical
associations to link to the Foundation on it’s page
so more families and physicians can find us at www.tttsfoundation.org
Help to pass the assignment of a CPT code for the treatment
of laser surgery.