Below is a list of how medical professionals can be of help in the fight against twin to twin transfusion syndrome and the programs of The Twin to Twin Transfusion Syndrome Foundation. If you would like to get more involved, please call and let us know. A list has also been created for parents in their TTTS book and on this site.
Give out Foundation brochures to patients with a monochorionic placenta, especially those diagnosed with twin to twin transfusion syndrome so they have information to go home with and a number to call.
Fill out a registry during your patient's pregnancy. Have the parents mail the form back to the Foundation after the birth of their babies.
Spread the word of the Foundation to your colleages and help us increase referrals.
Make a commitment to go to Congress with us and change the standard of care of ultrasounds to weekly from 16 weeks through delivery of the babies. We also will be fighting Medicare to pay for laser surgeries out of the patient's state of residence.
Make a financial gift and encourage your patients to support
the work of the Foundation. It would be extremely meaningful
for a family to their doctor made a donation in their babies'
names. Many employers provide matching funds.
Become a member of our medical advisory board.
Become a member of our Circle of Care Group and help sponsor treatments.
Become a member of The Miracle Miles Program of Midwest Express Airlines. As an organizational nonprofit member, every donation of 15,000 miles earns us a free airline ticket to fly a mother for treatment that she otherwise could not afford.
Arrange a presentation by The Twin to Twin Transfusion Syndrome Foundation.
Learn more about endowments and planned giving to help sustain the Foundation.
Have an article printed in your city newspaper and/or national magazines about your involvement in fighting twin to twin transfusion syndrome and have a sidebar about The Twin to Twin Transfusion Syndrome Foundation.
Have the local news do a story about you and babies you have helped save, and include The Foundation’s information.
Write to authors of pregnancy books and encourage them to include The Foundation as a resource in the back of their book, and to also include a chapter on the syndrome. This can also be done in journal articles or letters to the journal editors.
Scan the Internet and ask various pregnancy and medical associations to link to the Foundation on it’s page so more families and physicians can find us at www.tttsfoundation.org
Help to pass the assignment of a CPT code for the treatment of laser surgery.