Once a monochorionic placenta is determined, with or without a diagnosis of TTTS, we strongly advocate weekly ultrasounds from 16 weeks through delivery of the babies and for you to give your patient a TTTS Foundation brochure. We will then mail them more information. The majority of parents want to become educated on the risk of TTTS even if they are not yet diagnosed. If they are diagnosed, we will overnight our TTTS book by Federal Express so they will receive it immediately.
Encourage the diagnosed family to contact the Foundation. They may call toll-free at 800-815-9211. They may also reach us online at tttsfoundation.org.
Go over the list of questions, that we have provided, with the diagnosed family. Give them a copy of the questions and tell them you will go over them at each visit. This will give them the perspective they need to see where they are in the diagnosis of the disease. The goal is to narrow the huge amount of information on TTTS to only what is relevant to 'their' babies and 'their' pregnancy. The measurements will let them be able to focus on what they need to fight. They will also help them understand 'why' things would be improving or taking a turn for the worst. With this specific information, they will gain a sense of control.
Let parents know that you will be helping them create a plan of action, with backup plans, based on the answers to the questions. Let them know you are not taking the wait and see approach. You may give them a copy of the enclosed plan of action or they will get it in the 'parent version' of this book.
Start your patient on nutritional therapy of 3 cans of Boost protein drinks a day along with immediate bedrest. You may read more about this therapy in the Nutrition and Bedrest section of this book. You may also contact Dr. Julian De Lia at 414-447-3535. Dr. De Lia may be also reached online at tttsmd.com.
Once your patient has been diagnosed with TTTS, please begin to fill out the enclosed registry to help with our research. Your help would be deeply appreciated.